Therapeutic approaches in intervention centers for deaf children in the metropolitan region of Chile
Enfoques terapéuticos en centros de intervención para niños sordos en la región metropolitana de Chile
Mario Bustos Rubilar; Eduardo Fuentes-López; Pamela Castro Abarca
Abstract
Purpose: to characterize the therapeutic intervention centers for children with hearing impairment in the metropolitan region of Chile.
Methods: an observational, descriptive, cross-sectional study, in which a survey was carried out on intervention centers for children with hearing impairment in the metropolitan region of Chile. Variables related to therapeutic approach, characteristics of users and their incorporation into the educational system, interdisciplinary work and type of financing were measured. A cluster analysis was performed to evaluate similarities between centers.
Results: twenty-eight centers were identified, 27 of which answered the survey. 64.29% used the oral approach, 28.57% mixed and 7.4% gestural. 75% of the institutions have a multidisciplinary team. All centers were inserted in some type of educational establishment, with 51.85% in regular education. Within the institutions where the program is financed exclusively with state funds, 50% utilize the oral approach, while in those of public-private financing, only 28.57% utilize this approach. The set of intervention centers presented heterogeneity, observing greater similarity between hospitals and schools.
Conclusion: the variability of the centers represents a problem in defining a country policy regarding the intervention of these users.
Keywords
Resumen
Objetivo: caracterizar los centros de intervención terapéutica para niños con discapacidad auditiva de la región metropolitana de Chile.
Métodos: estudio observacional, descriptivo, de corte transversal. Se realizó una encuesta a centros de intervención para niños con discapacidad auditiva en la región metropolitana de Chile. Se midieron variables relacionadas con enfoque terapéutico, características de los usuarios y su incorporación al sistema educativo, trabajo interdisciplinario y tipo de financiamiento. Se realizó un análisis de conglomerado para evaluar similitudes entre centros.
Resultados: se identificaron 28 centros, de los cuales 27 respondieron la encuesta. El 64,29% utilizó enfoque oral, 28,57% mixto y 7,4% gestual. El 75% de las instituciones tiene un equipo multidisciplinario. Todos los centros estuvieron insertos en algún tipo de establecimiento educacional, estando un 51,85% en educación regular. Dentro de las instituciones donde el programa se financia exclusivamente con fondos estatales, el 50% utiliza enfoque oral, mientras que en los de financiamiento público-privado, sólo un 28,57% utiliza este enfoque. El conjunto de centros de intervención presentó heterogeneidad, observándose mayor similitud entre hospitales y colegios.
Conclusión: la variabilidad de los centros representa un problema en la definición de una política país en cuanto a la intervención de estos usuarios.
Palabras clave
Referências
1. World Health Organization. Deafness and hearing loss. [acesso em 2017 abr 17]. Disponível em: http://www.who.int/mediacentre/factsheets/fs300/en/.
2. Olusanya BO, Neumann KJ, Saunders JE. The global burden of disabling hearing impairment: a call to action. Bull World Health Organ. 2014;92(5):367-73.
3. Nazar G, Goycoolea M, Godoy JM, Ribalta G, Boettiger P. Evaluación auditiva neonatal universal: Revisión de 10.000 pacientes estudiados. Rev. Otorrinolaringol. Cir. Cabeza Cuello. 2009;69(2):93-102.
4. Yoshinaga-Itano C. Early intervention after universal neonatal hearing screening: impact on outcomes. Ment Retard Dev Disabil Res Rev. 2003;9(4):252-66.
5. Joint Committee on Infant Hearing. Year 2007 position statement: principles and guidelines for early hearing detection and intervention programs. Pediatrics. 2007;120(4):898-921.
6. Lieu JE, Tye-Murray N, Karzon RK, Piccirillo JF. Unilateral hearing loss is associated with worse speech-language scores in children. Pediatrics. 2010;125(6):e1348-e1355.
7. Núñez F. Detección e intervención precoz de la hipoacusia en la infancia: ¿Estamos donde deberíamos? An Pediatr (Barc). 2017;87(1):1-2.
8. Chile. Ministerio de Salud. Guía Clínica Hipoacusia Bilateral en personas menores de 4 años. Santiago: MINSAL; 2013.
9. Yoshinaga-Itano C, Sedey AL, Coulter DK, Mehl AL. Language of early- and later-identified children with hearing loss. Pediatrics. 1998;102(5):1161-71.
10. Moeller MP. Early intervention and language development in children who are deaf and hard of hearing. Pediatrics. 2000;106(3):e43.
11. Cole EB, Flexer C. Children with hearing loss: developing listening and talking, birth to six. 2nd ed. San Diego: Plural Publishing; 2010.
12. Marschark M, Spencer P. The Oxford handbook of deaf studies, language and education. 2nd ed. New York: Oxford University Press; 2010.
13. Tomblin JB, Oleson JJ, Ambrose SE, Walker E, Moeller MP. The influence of hearing aids on the speech and language development of children with hearing loss. JAMA Otolaryngol Head Neck Surg. 2014;140(5):403-9.
14. Geers AE, Mitchell CM, Warner-Czyz A, Wang NY, Eisenberg LS, CDaCI Investigative Team. Early sign language exposure and cochlear implantation benefits. Pediatrics. 2017;140(1):e20163489.
15. Humphries T, Kushalnagar P, Mathur G, Napoli DJ, Padden C, Rathmann C et al. Language acquisition for deaf children: Reducing the harms of zero tolerance to the use of alternative approaches. Harm Reduct J. 2012;9:16.
16. Massone MI, Báez M. Deaf children's construction of writing: insights from Argentina. Sign Language Studies. 2009;9(4):457-77.
17. Plaza-Pust C. Bilingualism and Deafness: On Language Contact in the Bilingual Acquisition of Sign Language and Written Language. Berlin: De Gruyter Mouton; 2016.
18. Holt RF, Beer J, Kronenberger WG, Pisoni DB, Lalonde K. Contribution of family environment to pediatric cochlear implant users' speech and language outcomes: some preliminary findings. J Speech Lang Hear Res. 2012;55(3):848-64.
19. Aragón C. Implante coclear: revisión bibliográfica. Rev. otorrinolaringol. cir. cabeza cuello. 2014;74(2):164-70.
20. Anderson C, Arnoldi K. Auditory-verbal rehabilitation of cochlear implant users and other listening devices. San Diego: Plural Publishing; 2011.
21. Marschark M, Sarchet T, Rhoten C, Zupan M. Will cochlear implants close the reading achievement gap for deaf students? In: Marschark M, Hauser PC. Deaf cognition: foundations and outcomes. New York: Oxford University Press; 2010. p.99-126.
22. Niparko JK, Tobey EA, Thal DJ, Eisenberg LS, Wang NY, Quittner AL et al. Spoken language development in children following cochlear implantation. JAMA. 2010;303(15):1498-506.
23. Hawker K, Ramirez-Inscoe J, Bishop DV, Twomey T, O'Donoghue GM, Moore DR. Disproportionate language impairment in children using cochlear implants. Ear Hear. 2008;29(3):467-71.
24. Hyde M, Punch R, Komesaroff L. Coming to a decision about cochlear implantation: parents making choices for their deaf children. J Deaf Stud Deaf Educ. 2010;15(2):162-78.
25. Mitchell RE, Karchmer M. Chasing the mythical ten percent: Parental hearing status of deaf and hard of hearing students in the United States. Sign Language Studies. 2004;4(2):138-63.
26. Fitzpatrick EM, Stevens A, Garritty C, Moher D. The effects of sign language on spoken language acquisition in children with hearing loss: a systematic review protocol. Syst Rev. 2013;2:108.
27. Olusanya BO, Ruben RJ, Parving A. Reducing the burden of communication disorders in the developing world: an opportunity for the millennium development project. JAMA. 2006;296(4):441-4.
28. Olusanya BO. Highlights of the new WHO Report on Newborn and Infant Hearing Screening and implications for developing countries. Int J Pediatr Otorhinolaryngol. 2011;75(6):745-8.
29. Sininger YS, Grimes A, Christensen E. Auditory development in early amplified children: factors influencing auditory-based communication outcomes in children with hearing loss. Ear Hear. 2010;31(2):166-85.
30. Vohr B, Jodoin-Krauzyk J, Tucker R, Topol D, Johnson MJ, Ahlgren M et al. Expressive vocabulary of children with hearing loss in the first 2 years of life: impact of early intervention. J Perinatol. 2011;31(4):274-80.
Submetido em:
28/08/2017
Aceito em:
17/04/2018


