Parental training for the behavioral management of children with Prader-Willi syndrome: impact on the mental health and parenting practices of the caregiver
Treino parental para manejo comportamental de crianças com síndrome de Prader-Willi: impacto sobre a saúde mental e práticas educativas do cuidador
Maria Luiza Guedes de Mesquita; Raquel Suriano; Luiz Renato Rodrigues Carreiro; Maria Cristina Triguero Veloz Teixeira
Abstract
Purpose: we verified the impact of the parent training program for management of children and adolescents with Prader-Willi Syndrome on the mental health caregivers.
Methods: the sample was composed by five mothers of children / adolescents with Prader-Willi Syndrome between 6-18 years. The data collection instruments were: a) Questionnaire for verification Mothers' knowledge about the syndrome, b) Inventory Self-Assessment for Adults 18-59 years c) Inventory of Parental Styles / maternal and paternal educational practices; d) Survey of difficulties and concerns about their children. The study was conducted in four phases: pre-intervention, intervention, post-intervention and follow-up.
Results: as a result we find that mothers have adopted parental educational practices based on positive monitoring, decreased risk practices.
Conclusion: we conclude that there was an improvement in indicators of emotional difficulties of mothers, seized identify and manage factors that harmed the physical health, behavior and school learning of the children and the need to involve other family members in child care.
Keywords
Resumo
Objetivo: verificamos os indicadores de impacto na saúde mental de cuidadores de um programa de treinamento parental para manejo de crianças e adolescentes com Síndrome de Prader-Willi.
Métodos: a amostra foi composta por 5 mães de crianças/adolescentes com Síndrome de Prader-Willi entre 6 a 18 anos. Os instrumentos de coleta de dados foram: a) Questionário para verificação de conhecimentos das mães sobre a síndrome, b) Inventário de Auto-avaliação para Adultos de 18 a 59 anos, c) Inventário de Estilos Parentais/Práticas educativas maternas e paternas; d) Levantamento de dificuldades e preocupações sobre os filhos. O estudo foi realizado em quatro fases: pré-intervenção, intervenção, pós-intervenção e seguimento.
Resultados: as mães passaram a adotar práticas parentais educativas baseadas na monitoria positiva, diminuíram as práticas de risco.
Conclusão: houve melhora em indicadores de dificuldades emocionais das mães, apreenderam a identificar e manejar fatores que prejudicavam a saúde física, o comportamento e a aprendizagem escolar dos filhos e a necessidade do envolvimento de outros familiares no cuidado do filho.
Palavras-chave
Referências
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Submetido em:
20/01/2016
Aceito em:
16/07/2016
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