Use and implementation of the International Classification of Functioning, Disability and Health with Children and Youth within the context of Augmentative and Alternative Communication: an integrative literature review
Amanda Brait Zerbeto; Gloria Soto; Regina Yu Shon Chun; Maria de Lurdes Zanolli; Ana Carolina Franzolin Araujo Rezende; Michael Clarke
Abstract
Purpose: to discuss the implementation and use of the International Classification of Functioning, Disability and Health (ICF) and International Classification of Functioning, Disability and Health, Children and Youth Version (ICF-CY) among children and adolescents, within the Augmentative and Alternative Communication (AAC) field.
Methods: an integrative literature review. PubMed, Web of Science and VHL databases were searched for papers published between 2006 and 2017 that reported on the use of ICF and ICF-CY within the AAC context. Eighteen papers were reviewed and sorted into: Category i) papers which reported on the use of the ICF or ICF-CY with people who rely on AAC; and Category ii) theoretical papers or papers that used the ICF and ICF-CY to organize the results.
Results: papers used the frameworks with different purposes, including the characterization of the children and their environment, goal setting and measurement of the results of therapeutic intervention. The papers drew on all elements, however, Activities and Participation were the components most used. Parents or caregivers were most commonly consulted in classifying the children’s and young people’s profiles of functioning, followed by the Educators and speech and language pathologists.
Conclusion: classifications have shown advantages when used in the AAC field. Therefore, it is necessary to provide training in order for professionals to implement them in services.
Keywords
Referencias
1. ICF International Classification of Functioning, Disability and Health. Geneva: World Health Organization; 2001.
2. ICF-CY International Classification of Functioning, Disability and Health, Children and Youth version. Geneva: World Health Organization; 2007.
3. Delarosa E, Horner S, Eisenberg C, Ball L, Renzoni AM, Ryan SE. Family impact of Assistive Technology Scale: development of a Measurement Scale for Parents of Children with Complex Communication Needs. Augmentative and Alternative Communication. 2012;28(3):171-80.
4. Pless M, Granlund M. Implementation of the International Classification of Functioning, Disability and Health (ICF) and the ICF Children and Youth version (ICF-CY) within the context of Augmentative and Alternative Communication. Augmentative and Alternative Communication. 2012;28(1):11-20.
5. Raghavendra P, Bornman J, Granlund M, Bjorck-Akesson E. The World Health Organization’s International Classification of Functioning, Disability and Health: implications for clinical and research practice in the field of augmentative and alternative communication. Augmentative and Alternative Communication. 2007;23(4):349-61.
6. Mei C, Reilly S, Reddihough D, Mensah F, Green J, Pennington L et al. Activities and participation of children with cerebral palsy: parents perspectives. Disability and Rehabilitation. 2015;37(23):2164-73.
7. ICD 10 International Statistical Classification of Diseases and Related Health Problems. Geneva: World Health Organization; 1992.
8. Pennington L, Marshall J, Goldbart J. Describing participants in AAC research and their communicative environments: Guidelines for research and practice. Disability and Rehabilitation. 2007;29(7):521-35.
9. Simeonsson RJ, Bjorck-Akesson E, Lollar DJ. Communication, Disability, and the ICF-CY. Augmentative and Alternative Communication. 2012;28(1):3-10.
10. Granlund M, Bjorck-Akesson E, Wilder J, Ylven R. AAC Interventions for children in a family environment: implementing evidence in practice. Augmentative and Alternative Communication. 2008;24(3):207-19.
11. Light J, McNaughton D. Designing AAC Research and Intervention to Improve Outcomes for Individuals with Complex Communication Needs. Augmentative and Alternative Communication. 2015;31(2):85-96.
12. Clarke M, Newton C, Petrides K, Griffiths T, Lysley A, Price K. An examination of relations between participation, communication and age in children with complex communication needs. Augmentative and Alternative Communication. 2012;28(1):44-51.
13. Raghavendra P, Olsson C, Sampson J, McInerney R, Connell T. School participation and social networks of children with complex communication needs, physical disabilities and typically developing peers. Augmentative and Alternative Communication. 2012;28(1):33-43.
14. Rowland C, Fried-Oken M, Steiner SAM, Lollar D, Phelps R, Simeonsson RJ et al. Developing the ICF-CY for AAC profile and code set for children who rely on AAC. Augmentative and Alternative Communication. 2012;28(1):21-32.
15. Rowland C, Fried-Oken M, Bowser G, Granlund M, Lollar D, Phelps R et al. The Communication Supports Inventory-Children & Youth (CSI-CY), a new instrument based on the ICF-CY. Disability and Rehabilitation. 2016;38(19):1909-17.
16. Klang N, Rowland C, Fried-Oken M, Steiner S, Granlund M, Adolfsson M. The content of goals in individual educational programs for students with complex communication needs. Augmentative and Alternative Communication. 2016;32(1):41-8.
17. Bornman J, Murphy J. Using the ICF in goal setting: Clinical application using Talking Mats. Disability and Rehabilitation: Assistive Technology. 2006;1(3):145-54.
18. Hidecker MJ, Paneth N, Rosenbaum PL, Kent R, Lillie J, Eulenberg JB et al. Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Developmental Medicine & Child Neurology. 2011;53(8):704-10.
19. Bunning K, Gona JK, Newton CR, Hartley S. Caregiver perceptions of children who have complex communication needs following a home-based intervention using Augmentative and Alternative Communication in rural Kenya: an intervention note. Augmentative and Alternative Communication. 2014;30(4):344-56.
20. Romano N, Chun RYS. Condições linguístico-cognitivas de crianças usuárias de comunicação suplementar e/ou alternativa segundo componentes da CIF. Distúrb. Comun. 2014;26(3):503-18.
21. Wallis S, Bloch S, Clarke M. Augmentative and alternative communication (AAC) training provision for professionals in England. J. Enabling Technol. 2017;11(3):101-12.
22. Oxford Centre for Evidence-Based Medicine. Levels of evidence [Internet] 2009 [viewed 01 jul 2020]. Available from: https://www.cebm.net/2009/06/oxford-centre-evidence-based-medicine-levels-evidence-march-2009/
23. Stucki G, Ewert T, Cieza A. Value and application of the ICF in rehabilitation medicine. Disability and Rehabilitation. 2002;24(17):932-8.
24. Granlund M, Eriksson L, Ylven R. Utility of international classification of functioning, disability and health’s participation dimension in assigning ICF codes to items from extant rating instruments. J Rehabil Med. 2004;36(3):130-7.
25. Imms C, Adair B, Keen D, Ullenhag A, Rosenbaum P, Granlund M. ‘Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Dev Med Child Neurol. 2016;58(1):29-38.
Submitted date:
26/06/2020
Accepted date:
12/10/2020
